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      <image:title>Home - About</image:title>
      <image:caption>Life kept knocking me down over and over again or atleast that was my perception when I was lost. I had a tragic accident when I was 27 years old that put me on a path from hell for 10 long years. Looking back I am not sure how I survived. How did I make it through when I was always in fight or flight mode. Thankfully I wrote a lot and used a ton of coping skills or I would not be here today sharing my story and knowlege so that I can empower others. My first spine operation in 2007 kicked in a bone disease,Diffuse Idiopathic Skeletal Hyperostosis (DISH or Forestier's Disease). This rare disease has caused me to have over 12 spine surgeries and many other ones along the way. With massive resillace I made it through through all of it I raised my 3 children and kept my marriage going. It was not perfect by any means. There are so many horror stories along the way I could publish book after book if I chose to write. When I read back about things that happened I sometimes still can't believe that it was me. Some how by the grace of god and a will that just would not quit I never got hooked on the pill I was prescribed by the doctors. Then on FEB 27 2016 I lost my foster sister and shortly before that my oldest( who is my step son) although I have always considered him mine, he lost his mother. Both of them from a drug overdose. At that moment I realized what a gift that had been brought into my life. MY LIFE!!! How I had been so angry and poor me . That all needed to change. How I could help so many people with the knowledge that I knew. How it was so much bigger than I am. I started working on myself. I lost so much weight. I lost so much emotional baggage. I was soon healthier than I had been in 10 years and I was once among the land of the living. I will continue to work on myself for as long as I live. I had not realized that I was already doing what I was so passionate about , mentoring people. Lifting them up and carrying them forward when they were to weak to do it themselves. Just like someone had done for me. Through all of this I managed to raise 3 beautiful children and keep my marriage of 16 years going. I now share my journey with others and continue to get operated on because this blasted disease will never go away. But I have been able to do some kick ass things in the last 3 years. We have 3 amazing dogs and I have so much more to say but I will save it for another day. E will click the link to go to your bio</image:caption>
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      <image:title>Home - What the Hell IS name of bone disease here</image:title>
      <image:caption>Learn more about said disease and to get involved in the conversation. Then they would click the link to an external scientific page talking about the disease</image:caption>
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    <lastmod>2025-05-09</lastmod>
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